In 2009, the United Kingdom was one of the first countries to implement the rollout of the People Living with HIV Stigma Index. This generated 5 reports, which can be found here. Findings were based on peer interviews with community members. Building on the success of the 2009 rollout, the 2015 Stigma Survey continued to engage with community while also gaining NHS Ethics approval, thus creating a more academically robust dataset.
Stigma Survey UK 2015
The adult survey was developed in collaboration with community members from a broad range of organisations or institutions, listed below. These people have markedly different backgrounds and their collective knowledge and experience, ensure both a high level of expertise as well as comprehensive representation among the key population groups that are affected by HIV.
The advisory group met regularly throughout the preparation of the survey, the implementation of the study and subsequent analysis of data as well as the dissemination of findings.
The members of the advisory group are affiliated with: FPA, Public Health England (PHE), National AIDS Trust (NAT), HIV Scotland, NAZ Project London, Leicester AIDS Support Services (LASS), All Party Parliamentary Group on HIV and AIDS (APPG), APPG for Sexual Health Northern Ireland, Scottish Parliament, Chelsea and Westminster Hospital, Homerton University Hospital, British HIV Association (BHIVA) Nurses HIV Association (NHIVNA), Children’s HIV Association (CHIVA), International AIDS Society (IAS), Positively UK, African Health Policy Network (AHPN) , Clinic Q, Terrence Higgins Trust (THT), University of Glasgow.
Young People’s Stigma Survey UK
This survey was developed in collaboration with young people living with HIV from across the country. Experts in the field who research or work directly with young people living with HIV were also involved. The advisory group met regularly throughout the preparation of the survey and will continue to do so throughout the implementation of the study and subsequent analysis of data as well as the dissemination of findings.
If you are HIV positive and aged between 15 to 24 years, You are invited to share your unique experience and contribute to the knowledge around your rights and how stigma and discrimination affect the lives of young people living with HIV.
Please access the survery by following this link: https://snapsurvey.phe.org.uk/snapwebhost/s.asp?k=147401600809