Tag Archives: Government

Doctors Criticise London HIV Drugs Cost-Cutting Deal

Medical professionals and patient support groups have raised concerns after people with HIV in London have been asked to switch to taking different antiretroviral drugs, as part of cost-cutting measures.

In April, London HIV Consortium, which is responsible for the capital’s HIV services, was tasked with saving £8m over two years, having to manage growing patient numbers on a budget that has not increased in line with inflation.

London Specialised Commissioning Group (LSCG), which commissions the capital’s HIV treatment, negotiated terms with atazanavir manufacturer Bristol Myers Squibb to receive discounts for larger orders of the drug.

As a result, clinics have been given new “prescription messages” – recommending doctors ask certain HIV patients who take a life-saving protease inhibitor other than atazanavir to switch to atazanavir – with saving money given as the overriding justification.

But now HIV doctors and support groups have raised concerns that switching prescriptions creates “medical risks” and raises “ethical issues”.

LSCG HIV drugs commissioner Claire Foreman said: “It is not in anyone’s interest – not our patients nor the taxpayer – to treat fewer people with more expensive drugs.

“There are no financial incentives for clinics to switch patients.”

No HIV patient will be prescribed an incorrect medicine as a result of this process” – Claire Foreman, Lead commissioner, LSCG

However, an HIV specialist at a London clinic, who wanted to remain anonymous, told the BBC: “Clinics are under financial pressure to contribute to the £8m savings.

“A confidential statement went out to doctors saying ‘there is a carrot and sticks approach to this. If you reach your targets each individual service will be set, there will be benefits for you this year, and clearly be benefits for you in next year’s budget’,” he added.

“Claire Foreman has back-pedalled on this.”

Ms Foreman denied this allegation, adding: “Doctors are taking a leading role to ensure patients can be treated despite the pressure on budgets.”  The clinician added it was “clearly evident” if doctors did not meet targets for patients switching to atazanavir.

“Doctors are under pressure from the LSCG to get patients to swap to cheaper prescriptions.  I’m not sure if it was taken into account the pressure that would put clinicians under,” he added.  “Not only does that discomfort the patient, it’s costing us in terms of clinic visits.”

Ms Foreman said this was not the case, adding: “No HIV patient will be prescribed an incorrect medicine as a result of this process.”

The anonymous specialist went on to say: “It’s difficult to prescribe certain pills in London, that people outside London can get, due to financial pressure from doctors’ managers.”

Patient Choice

LSCG said its prescription messages were in line with British HIV Association guidelines, but these were last updated in 2008 so did not consider drugs licensed since then.

More recent guidelines, including those of the European AIDS Clinical Society, recommend a range of drugs which are available through the NHS but are not suggested for prescription in LSCG’s messages.

However the specialist cited raltegravir as an example of an antiretroviral drug “that everyone wants access to, because it has few side-effects.

AHPN chief Francis Kaikumba fears African communities will be adversely affected

“But commissioners have stated it will only be used under certain circumstances.

“That’s entirely down to cost pressures. It would be easier to get outside London,” he said.  The specialist added: “The prescription messages stop putting patient choice at the centre of care in London.”

“This could potentially damage doctor-patient relationships.”

LSCG said: “All standard of care drugs licensed in the UK are available for use by HIV doctors.”

Dr Mike Youle, an HIV consultant at north London’s Royal Free Hospital, told the BBC about potential ethical and medical implications of switching patients’ prescription.

“When you’re talking about someone who has been stable on a drug for five years, I see no medical reason to change their prescription,” he said.

“There’s an ethical issue about switching people.”

But Prof Brian Gazzard, chairman of the drug purchasing group which advised the consortium, said: “All the doctor needs to do is note the reason the patient doesn’t want to switch.”

Meanwhile, African Health Policy Network chief Francis Kaikumba said: “Vulnerable African communities will be adversely affected as studies have shown African people are far less likely to question their health advisors.”

Ms Foreman said: “Clinicians and commissioners have been clear that any targeting would be unacceptable.”

Side Effects

Addressing the medical implications, Dr Youle said: “Every time you change medication with HIV, you run two risks.  One is having a side-effect. Something might go wrong.  The second is you might fail on the next drug. The virus might be resistant and you may put your health at risk.”

Prof Gazzard said: “Switching can involve side effects. If it does the patient will be told ‘we’ll switch you back’.”

Switching HIV drugs can involve side effects

Dr Yusef Azad, from the National Aids Trust, highlighted emotional pressures patients might come under saying: “With HIV, daily adherence is vital. Concerns about their medication might undermine a patient’s willingness to adhere to treatment.”

Prof Gazzard said: “If stress is being introduced into that system it’s a problem between the doctor and patient, not the London Consortium.”

Meanwhile, Dr Youle asked: “What happens when the next tender goes out and a different drug becomes the cheapest?”  You then have to say the drug you were originally on is cheaper and we’re going to move you back.”

Prof Gazzard said: “There will be a balance between the saving and the difficulties of switching people every two years.”

Some HIV support groups have said the deals between the LSCG and pharmaceutical companies were rushed through.

Robert Fieldhouse, editor of Baseline, a magazine for people living with HIV, said: “The consultation took place behind closed doors with the wider HIV community in the dark.”

But Ms Foreman said: “Commercially confidential processes mean specific prices of companies cannot be shared.”

Dr Asad said a wider debate should have been had before procurement.  “It would have been better to have a more open discussion earlier – asking ‘is it ok to switch stable patients simply on the basis of cost?’,” he said.

Meanwhile, with the government’s Health and Social Care Bill proposing to shake-up the way the NHS in England works, London’s HIV drugs procurement will be closely scrutinised to see how money savings could be implemented on a wider scale.

Original Article By Andy Dangerfield via BBC News

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Consultation To Start On Managing Urgent Care In Loughborough

Members of the public are being invited to have their say on the Walk-In Centre and the future of urgent care in Loughborough and surrounding areas.

West Leicestershire Clinical Commissioning Group (WLCCG), which will be responsible for commissioning or ‘buying’ local healthcare from April 2013, has been looking at urgent care services locally and how they are provided.

The CCG wants to ensure that when people need urgent care they can receive it as effectively as possible, whilst looking to work with other parts of the NHS to ensure that local services such as the community hospital are as effective as possible in bringing care closer to home.

As part of this a 12-week public consultation started last Wednesday (19 October) [Ed: We only received this news today, sorry for the delay], which offers two options:

· Option one is urgent care at the current Walk-In Centre at Pinfold Gate

· Option two is urgent care provided at Loughborough Hospital in Epinal Way

Option two is the preferred option as the hospital, which is 1.6 miles from Pinfold Gate, can provide more access to diagnostic tests, including more extended access to x-rays, potential access to ultrasound scans and blood tests. There are also beds where there is potential for patients to be kept in for observation and further potential for access to clinicians already working in the hospital.

Dr Nick Willmott, a GP and chairman of the group planning the development of urgent care in West Leicestershire, said: “This consultation is about enhancing services and making sure that patients receive the best care in the most appropriate setting for their health needs.

“We believe that our plans will provide an enhanced service for those who need urgent care, whilst we continue to encourage people to see their GPs when possible for less urgent needs.  Moving the Walk-In Centre could bring care closer to home for many patients accessing the urgent care service and could mean they wouldn’t have to travel into Leicester. It would also avoid duplication of services locally.”

Dr Edward Clode-Baker, of Parkview Surgery, added:

“GPs want, wherever possible, to be the first port of call if you’re in doubt about what care you need. We are doing all we can to improve access both to telephone advice and seeing patients appropriately. This will free up services at the Walk-In Centre to treat those with urgent need.”

The project group developing the proposals included GPs, a representative of Leicestershire Local Involvement Network (LINk), a patient representative, and officers of the West Leicestershire CCG. Feedback has also been received from staff at the Walk-In Centre, local government colleagues and the local MP. Leicestershire LINk has been involved in the consultation process and the engagement event held in August, and will be monitoring developments closely on behalf of patients and the public.

NHS West Midlands Clinical Commissioning Group have produced a document: “Loughborough Walk-In Centre, Managing Urgent Care In Loughborough – A Public Consultation” (pdf).  This document gives you the background to their public consultation about the Walk-In Centre and urgent care in Loughborough.

The Walk-In Centre provides urgent care services in Pinfold Gate for people living in or near Loughborough. they have proposals about how people can receive these services in future, and we need to understand what local people think about these proposals. They propose to create an urgent care centre
at Loughborough Hospital which will be supported by all the services available at
that centre. We believe this will produce an enhanced service for the local population with the coming together of the professional expertise and diagnostic services that can be provided by Loughborough Hospital. This can only be achieved by the movement of the Walk-In Centre and the resources that
support it.

Please take a few moments to read through the document, and then to answer the questions at the end.  The information and questionnaire are also
available online, at http://www.lcr.nhs.uk

During the consultation people will be able to have their say in a questionnaire which will be available from the Walk-In Centre, local libraries, GP surgeries and council buildings, as well as online by visiting http://www.lcr.nhs.uk before 11 January 2012. It will also be available to fill in at a series of public meetings, which take place on:

For more information, or to request a questionnaire via post, please call Jo Lilley on 0116 295 7626 or email jo.lilley@lcr.nhs.uk

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Gaddafi’s HIV Shakedown

Zakia Saltani has been warned not to talk to the press. She doesn’t care. She has waited 13 years to tell her story, and the Libyan government’s threats can’t stop her now. “After what happened to my family, what more can they do?” she asks. “I am beyond fear.”

At her friend’s house in Benghazi, with the red-black-and-green flag of the anti-Gaddafi rebellion spread proudly across her shoulders, she shows a framed photograph of her son, Ashur. He died of AIDS-related complications in May 2005, when he was 8. He had been one of more than 400 Libyan children who were admitted to the Al Fateh pediatric hospital in Benghazi 13 years ago with routine complaints like colds and earaches. They left with HIV. Like Ashur, roughly 60 have since died. Others are hanging on.

Until the Feb. 20 liberation of Benghazi by anti-Gaddafi protesters, the regime was able to bully people like Saltani into silence. Meanwhile, the government blamed the outbreak on five Bulgarian nurses and a Palestinian doctor at the hospital, falsely accusing them of deliberately infecting their young patients, and sentencing them to death. The medics were finally released in 2007, but not before the regime had extorted an Eastern European debt-forgiveness package and roughly three quarters of a billion dollars in supposed compensation and health-care assistance, together with a civilian nuclear-development deal and a “very good military accord” (in the words of Gaddafi’s British-educated son Saif al-Islam) with the French government “and other confidential stuff we shouldn’t discuss on the record,” the smiling Saif told NEWSWEEK at the time.

Now Saltani and other ordinary Libyans are starting to speak out at last. She says this is the first interview she has ever given—and her anger against Muammar Gaddafi and his 41-year dictatorship begins to spill out. “On Feb. 2, 1998, we went to the hospital because Ashur had a fever and a cough,” she says. “He was 4 months old, and we stayed two days. We went back two weeks later for the same problems.” Shortly afterward she took her 5-year-old daughter, Mouna, to the same hospital with a high fever. Mouna also went home with HIV, although at the time Saltani had no way of knowing that either child had become infected.

The truth began to emerge a few months later. “In October we learned that the doctors were hiding something,” Saltani recalls. “They said there was something in his blood that they couldn’t identify. The head of the hospital told us not to say anything. When we found out it was HIV, the government told us the infection originated from outside Libya, and that it only affected 10 kids. Another doctor even tried to convince us that it wasn’t HIV, but tuberculosis.” When the families finally discovered just how many children had been infected, the regime sent many of the patients to Italy for analysis and treatment.

Foreign medics made useful scapegoats—and lucrative hostages.

Even then the regime still did its best to cover up the outbreak. Mohammed El Agili, 20, says he was 8 when his parents took him to Al Fateh for an eye operation in March 1998. Three days later he returned, still dizzy from the procedure. When rumors of AIDS swept through the city, he underwent HIV testing, along with all the other children who had been admitted to the hospital in early 1998. The result came back positive. “When I found out, I ran shouting through the streets like a lunatic,” says his father, Mahmoud. “And we made sure the government heard our cries. Gaddafi invited all the families to a tent in the desert outside Sert, saying he would give us whatever we wanted, but we had to keep quiet. ‘We don’t want foreigners to become involved in this,’ Gaddafi told us. ‘We don’t want this to get out of Libya.’ He warned us that our relatives outside Libya would be in danger if we talked. We were afraid. We had to keep quiet.”

The news blackout may have suited Gaddafi’s purposes, but it didn’t help young Mohammed deal with insensitive classmates. They bullied him until he finally gave up school at 12. A rabid fan of the Real Madrid football team, he now helps his brother run a mobile-phone shop near their house. Asked about his future, the HIV patient smiles at the question’s naivete. “My generation doesn’t think about the future,” he says. “Even without this disease, Gaddafi has destroyed all our futures.”

Although the cause of the outbreak remains a mystery, outside studies implicate poor hygiene at the hospital rather than any of the conspiracy theories that abound in Libya. According to a 2002 report by Italian medical investigators, all the infected children had received intravenous fluids, antibiotics, steroids, or bronchodilators, but no blood or blood products. Saltani says she found it hard to accept the regime’s allegations against the hospital’s foreign medical workers. “At first I didn’t believe it was them,” she says. “The Palestinian doctor and the Bulgarians had always taken good care of the children, but everyone was blaming them, so we believed it. We wanted to confront them face to face, but the government wouldn’t let us.”

Still, the foreign medics made useful scapegoats—and lucrative hostages. The ransom Gaddafi received for freeing them enabled him to pay the victims’ families roughly $1 million each, helping him to buy a little more silence. For 41 years he has controlled the country through a combination of violence, intimidation, and strategic payoffs. To test the regime’s limits on free speech was to risk imprisonment, torture, and death. And old habits persist, even in liberated Benghazi, where anti-Gaddafi rallies occur daily. The current director of Al Fateh Hospital, who was working there as a doctor when the infections took place, refuses to speak as long as Gaddafi holds sway in Tripoli.

Just before Saltani’s interview, her phone rings. The caller is Ibrahim El Oraibi, the representative who deals with the regime on behalf of the HIV families. She puts it on speakerphone so a reporter can hear. He screams at Saltani for violating the government’s gag order. “If Tripoli finds out, they will get angry and will stop sending AIDS medication to Benghazi!” Oraibi shouts. That could be a death sentence for Saltani: she herself contracted HIV from breast-feeding Ashur. Doctors say it’s a thing that happens only rarely, but it can happen. She has been taking antiretroviral drugs for a year, and has only two months’ supply left.

But she refuses to back down. “I don’t believe anything Gaddafi says anymore,” Saltani tells Oraibi. “I have been quiet for 13 years and I’m tired of it. I want to fight.” The intermediary pleads: “Don’t talk until we receive the medicine.” Saltani is unmoved. “Gaddafi needs to go—and you can go with him,” she says. “I’ve been waiting 13 years and I’m not going to wait any longer. He’s a liar, and I’m going to talk with whomever I wish.”

She hangs up on the caller and begins her interview.

Original Article by Mike Elkiin at The Daily Beast (March 2011)

Further reading: HIV Trial in Libya (Wikipedia)

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The following video is a Documentary by Mickey Grant about the Bulgarian Nurses in Libya.  It’s titled “INJECTION – AIDS, How Gaddafi and Son murdered over 400 Libyan children”.  Gaddafi used the possibility that he was executing these nurses partly because he was angry at having to pay the several billion dollar settlement to the families of the Pan Am Lockerbie Terrorist act he was responsible for.  In effect, he told behind the scenes negotiators that he wanted that same amount of money and was even willing to sale the oil exploration rights for 1 billion.

He also wanted the prisoner released in Scotland who was convicted of planting the bomb that blew up the Pan Am plane.  He stated that if this was done, he’d release the nurses and Palestinian doctor.  BP gave him the billon and hired lawyers and “others” to engineer the release of this terrorist.

The only newspaper that covered this was the Financial Times.

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UKBA proposals to deny entry or stay to migrants with NHS debt: a public health disaster waiting to happen

The changes to the Immigration Rules later this month will include a new provision allowing refusal of entry or stay where a migrant has an unpaid NHS debt.  While the Government has brought out the familiar narrative of ‘health tourism’ to justify using immigration controls as a form of punishment for people with NHS debts, Sarah from National AIDS Trust, writes that these plans are likely to have a detrimental impact of public health in the UK.

Sarah Radcliffe is Senior Policy and Campaigns Officer at NAT (National AIDS Trust). NAT is the UK’s HIV policy charity. They champion the rights of people living with HIV and campaign for change.  Sarah works on policy issues around migration and asylum, access to healthcare, poverty and welfare.  Her words follow:

The biannual announcement of changes to the Immigration Rules this month will include a new provision allowing refusal of immigration applications for entry or stay where a migrant has an unpaid NHS debt. The Department of Health have agreed to share information about individuals’ NHS debts with UKBA to make this possible.

The Government has brought out the familiar narrative of ‘health tourism’ to justify using immigration controls as a form of punishment for people with NHS debts. The DH and UKBA consultation documents outlined a plan of deterring people who are not entitled to free NHS secondary care from accessing it, by escalating the personal consequences of leaving an NHS debt unpaid.

Of course, what these proposals do not acknowledge is that it often in the best interest of the NHS, and the public generally, for chargeable migrants to access secondary healthcare. A key illustration of this is accessing treatment for HIV, the only STI and communicable disease which is subject to treatment charges.

HIV treatment is highly effective at keeping people well and out of hospital.  It is also highly effective at helping prevent onwards transmission of HIV – being on treatment reduces the probability that someone will pass on HIV by 96%. To get maximum benefit from HIV treatment, it is important that someone is diagnosed in good time.  People who are diagnosed late, or not at all, are most likely to become unwell and need to access more expensive treatment options.  The majority of new HIV cases come from someone who has not been diagnosed.

Charging for HIV treatment is highly effective in deterring people from accessing the individual and community benefits of treatment. It also is an effective way of deterring people from accessing testing, even though this is free, because why find out you are living with a lifelong condition if you won’t be able to afford treatment?  Migrant communities affected by HIV are already very likely to be diagnosed late, after they should have already started treatment.  In 2009, two thirds of new HIV diagnoses among African migrants were ‘late’.

This deterrence effect goes beyond those who are actually chargeable. Charging regulations are complex and it is not always clear to an individual migrant if they will or won’t be charged for their treatment. If they know that others in their community are pursued for debts that they can’t pay, they may assume they will also be charged and never seek treatment.  By the same token, it may not be clear to a migrant that they can still access treatment for other infectious diseases such as TB for free, if they have been charged for HIV. Patients stay away from TB treatment for this very reason.

Far from the image of the ‘health tourist’, entering the UK for the sole aim of using the NHS, most chargeable migrants with HIV are in the UK precariously, as refused asylum seekers or irregular migrants, and are living in destitution. Their NHS debts could be written off, but are often pursued, due to inconsistent application of the charging rules.

Threatening migrants with refusal of further applications for entry or stay in the UK will add to the deterrence effect already created by NHS charging rules – the Government has got that much right. What they are yet to acknowledge, though, is that these plans will succeed to the detriment of public health.

To find out more about the entitlement to healthcare for migrants read Wayne Farah’s blog “Access to Primary Healthcare for migrants” and visit our Health4Migrants website.

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THT Asks Government to Legalise and Regulate HIV Home Testing Kits

Almost two-thirds of people would consider using HIV home testing kits if they were legally available and regulated, according to a survey.

The poll, by Terrence Higgins Trust (THT), comes as the charity urged the Government to legalise and regulate home testing in a bid to cut the number of cases of undiagnosed HIV in the UK.

The sale of HIV home testing kits is currently illegal in the UK. While they can be bought over the internet, THT says they are unregulated, often of poor quality and do not direct users to places where they can get support.

Of 490 people surveyed who have not tested HIV-positive, 63% said they would consider using the kits if they were legalised and 51% thought legalisation would make them test more often.

Among gay men, one of the groups most at risk of HIV in the UK, 60% thought legalisation would make them test themselves more often.

In 2009, 22,200 people were estimated to be living with undiagnosed HIV in the UK.

Lisa Power, policy director for THT, said: “Reducing undiagnosed HIV is a major challenge. A quarter of those with HIV in the UK remain undiagnosed, and so are more likely to pass the virus on. One way to bring this number down is by increasing the opportunities for people to test outside of traditional settings.”

A spokeswoman for the Department of Health said: “We are considering our current policy on HIV home testing and whether we need to repeal the current regulations.

“Key to any repeal will be the availability of a quality-assured testing kit suitable for home use. We are working with the THT and others in taking forward our review.

“HIV testing is widely available from open-access NHS sexual health clinics. Our advice is clear – if you think you might be at risk from HIV, contact your local sexual health service or your GP for a test.”

Original Article by the Press Association

The Terence Higgins Trust policy document: HIV and Sexual Health: 12 things the Government can do was launched a few days ago, at this year’s Conservative Party Conference. The document, which includes a section on home testing, is available to download from here www.tht.org.uk/12things.

Are you interested in having a HIV test?  We offer a completely free and confidential rapid HIV test and you’ll get the results within 60 seconds from a simple finger prick test. We use the Insti HIV test produced by BioLytical laboratories. The test is 99.96% accurate from 90 days post contact for detecting HIV 1 and 2 antibodies. We also have a mobile testing van which is often out in communities providing mobile rapid HIV tests. Appointments are not always necessary, if you would like a test, please contact us on 0116 2559995

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September Round Up

If you’re reading this, the chances are you’re subscribed or receiving this news via Twitter but just in case you’re a casual browser why not stay a while, subscribe or follow us and read up on LASS and HIV/STI updates.  Here’s a brief roundup from last month’s posts

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GOVERNMENT & UK

A House of Lords Select Committee published a damning report on HIV in the UK, warning that the current priority given to HIV and Aids treatment by policy makers is ‘woefully inadequate’, and revealing that over 100,000 people in the UK will be living with the disease by next year. The Lords Select Committee on HIV and Aids in the UK also warned that the total cost of treatment would soon top £1 billion per year, and called for all new patients at GPs’ surgeries to be tested for the illness on an opt-out basis.

The Government announced last month that the rules on gay men donating blood will change from a lifetime ban to a 12 month deferral period.  This decision follows a review of the current policies around exclusion and deferral from blood donation by the Advisory Committee on the Safety of Blood, Tissues and Organs (SaBTO).

Employing sport to communicate HIV messages isn’t new, but one initiative aims to go further – imparting skills for planning, evaluating and funding a football-based HIV campaign
Follow LASSleics on TwitterSCIENCE

Scientists in the US have developed a strain of green-glowing cats with cells that resist infection from a virus that causes feline AIDS, a finding that may help prevent the disease in cats and advance AIDS research in people.

Raising the CD4 cell threshold for the initiation of antiretroviral therapy to 500 cells/mm3 would mean that almost 50% of patients would need to start HIV treatment within a year of their infection with HIV, investigators from an international study of seroconverters report in the October 15th edition of Clinical Infectious Diseases.

Scientists spent a decade trying—and failing—to map the structure of an enzyme that could help solve a crucial part of the AIDS puzzle. It took online gamers all of three weeks.

Spanish researchers have completed the first human trial of a new vaccine against HIV. It has been successful in 90% of the HIV-free volunteers during phase I testing. This vaccine brings great hope to eradicate HIV forever.
Follow LASSleics on TwitterINTERNATIONAL

The Zimbabwe government says it is considering drastic measures of door-to-door HIV testing campaigns for every citizen in the country in a move to try and eliminate new HIV infections.

Linkage to facility-based HIV care from a mobile testing unit is feasible, South African researchers report in the advance online edition of the Journal of Acquired Immune Deficiency Syndromes.  In a stratified random sample of 192 newly diagnosed individuals who had received CD4 test results, linkage to care was best among those who were ART eligible, Darshini Govindasamy and colleagues found.

The David Kato Vision & Voice Award will be presented annually, on Human Rights Day (10th December), to an individual who demonstrates courage and outstanding leadership in advocating for the sexual rights of lesbian, gay, bisexual, transgender and intersex (LGBTI) people, particuarly in enviroments where these uinduvidual face continued rejection, marginalization, isolation and persecution.  David Kato, the advocacy officer for Sexual Minorities Uganda was one of Uganda’s most prominent gay rights activists until January, when he was murdered in his home weeks after winning a court victory over a tabloid that called for homosexuals to be killed.  Read more about it here.
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Each month, a registered dietician from the NHS, visits LASS to offer helpful advice and information on food nutrition and healthy eating for people who live with HIV.  Our next session “The Truth About Fats” will be on Friday, 16th September 2011 from 12:00pm.  This is an opportunity to ask questions and speak with the dietitian directly about any concerns you may have.

Well done to TRADE Sexual Health after a very successful Gay Pride.  This year’s Leicester Gay Pride saw Trade Sexual Health join forces yet again with the Leicester GUM Clinic to present the Health & Wellbeing Marquee 2011!

  • Excellent strategy, well communicated.
  • Excellent and trusted leadership.
  • Excellent coaching and mentoring across the organisation.

These are just three of the positive statements used to describe Leicestershire AIDS Support Services by Investors in People after our recent assessment.  We are proud to announce that we are now officially recognised as an investor in people organisation.

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Lords Warn About “Woefully Inadequate Government Policies On HIV/AIDS

A House of Lords Select Committee today published a damning report on HIV in the UK, warning that the current priority given to HIV and Aids treatment by policy makers is ‘woefully inadequate’, and revealing that over 100,000 people in the UK will be living with the disease by next year. The Lords Select Committee on HIV and Aids in the UK also warned that the total cost of treatment would soon top £1 billion per year, and called for all new patients at GPs’ surgeries to be tested for the illness on an opt-out basis.

As the Select Committee published its report, the Terrence Higgins Trust (THT) released a new plan to help policy makers deal more effectively with HIV. THT said that the plan, ‘Tackling the Spread of HIV in the UK’, would help to bring down the disease’s transmission, and reduce the financial burden on the NHS by concentrating on four actions: halving undiagnosed and late diagnosed infections within three years; increasing the number of people living with HIV taking effective treatment from half to two-thirds in three years; identifying people who persistently take risks that expose them to HIV, and supporting them to change; and increasing HIV awareness.

The Terrence Higgins Trust said it would continue to campaign within the gay community.

THT’s Executive Director of Health Improvement, Genevieve Edwards, told So So Gay she was sure that it was possible to reduce transmission by improving early diagnosis and awareness. ‘Increasing the number of people on treatment is quite do-able, if you think that a quarter of people with HIV aren’t diagnosed,’ she said. ‘Many of those people have already gone past the point at which they should receive treatment. If we can start people on the right treatment sooner, that would go an awfully long way to achieving the target.’

Edwards welcomed the Lords’ recommendation that new patients at GPs’ clinics should be tested on an opt-out basis, especially in areas where infection is more common. ‘This has been done in ante-natal screening, and that’s been one of the big successes in the UK. Very few babies are born with HIV as a result of that campaign, because women who are diagnosed with HIV during pregnancy can be offered the right sort of treatment. So when you’re in an area of high HIV prevalence, this makes sense.’

The Lords Select Committee launched its report to coincide with the 25th anniversary of the iconic ‘Don’t Die of Ignorance’ campaign, which was run by the Committee’s Chairman, Lord Fowler – as the then Health Secretary. As the report was published, Fowler pointed out that although HIV was now more survivable than it was in the 1980s, it remained a serious problem and not enough was being done to improve awareness; one recent survey had found that a quarter of young people had received no information about HIV in the classroom.

‘In the last 25 years the development of new drugs has dramatically reduced the death toll,’ he said. ‘But that should not encourage a false sense of security. Serious medical and mental health problems remain for many with HIV. People can now live with HIV, but all of those infected would prefer to be without a disease which can cut short life and cast a shadow over their everyday life.’

Edwards echoed Fowler’s warning about the consequences of infection, but warned against a return to ‘Don’t Die of Ignorance’ style scare tactics. ‘Our evidence shows that scare tactics – not just for HIV, incidentally, but for all public health areas – don’t work. People tend to look away, or immediately think it’s aimed at someone else. So while that sort of direct campaign in the 1980s was hugely influential, it wouldn’t have the same impact today. We’ve learned that we need to find different ways to get that message across.

‘Of course, we have to be absolutely clear about the reality of living with HIV in the UK. Treatments have come a long way, and they’re enormously better than they were. But it’s not without consequence. I think we’re very clear about that. On the one hand, you don’t want to scaremonger; but you have to balance that against being honest about the realities.’

Fowler agreed, and said that improved treatment alone would not help. ‘Prevention must be the key policy,’ he added. ‘One essential message remains the same as in the 1980s: the more the partners, the greater the risk. Protect yourself. Use a condom.’

Original Article by Andy Wasley at sosogay.org

LASS offer a completely free and confidential rapid HIV test and you’ll get the results within 60 seconds from a simple finger prick test.  We use the Insti HIV test produced by BioLytical laboratories.  The test is 99.96% accurate from 90 days post contact for detecting HIV 1 and 2 antibodies.  Appointments are not always necessary, if you would like a test, please contact us on 0116 2559995

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Are Travel Restrictions on People with HIV Justified?

Here’s a new interesting report on travel restrictions for people living with HIV.

Many people take for granted the luxury of being able to travel to pretty well anywhere in the world – if we can afford it.

There may be reasons at a government or political level why certain destinations are out of bounds to certain people, but there is one unique category of person who are not welcome in many parts of the world, which has nothing to do with their beliefs or politics – people who are HIV positive.

Rajan Datar (from BBC World Service) looks at whether there are still health risks attached to letting travellers with HIV in, or is it just intolerance?

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Budget Takes Rights Away From People With HIV

In the Chancellor of the Exchequer’s Budget yesterday there was an announcement in the ‘small print’ which takes rights away from people with HIV – the protection against ‘dual discrimination’.

The Equality Act 2010 for the first time prohibited what is known as ‘dual discrimination’, where someone is discriminated against because of a combination of two characteristics – for example someone who is an older woman may be discriminated against not just because she is a woman or because she is older, but because of the combination of these characteristics (think of recent debate over discrimination against older women television presenters).

People with HIV can experience dual discrimination – because they are gay and have HIV, or because they are African and have HIV.  NAT worked with many human rights organisations to secure the provision in the Equality Act 2010 which prohibited such dual discrimination.  In the ‘Plan for Growth’ published along with the Budget, the Government announced this protection will not be implemented.

Deborah Jack, Chief Executive of NAT (National AIDS Trust), comments:

‘We condemn the Government’s refusal to implement protection against dual discrimination – this is a backward step in the struggle for the rights of people with HIV and indeed many others who experience dual discrimination.

We seem to be back in the bad old days where human rights were thought somehow to harm the economy.  The Government should realise that ending all forms of discrimination in the workplace is not anti-business but provides us with the best possible workforce.  We urge the Government to change its mind and take a stand for fairness.’

Source: http://www.nat.org.uk

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NHS: Get involved! (Healthy Lives Healthy People)

The Government’s Public Health White Paper ‘Healthy Lives Healthy People’ set out its new vision for Public Health in England and the transfer of public health responsibilities to the local authority (Leicester City Council).

The NHS are holding a consultation event to discuss the ‘Healthy Lives Healthy People’ proposals and the associated consultation documents and would like to know your views.

If you are able to attend, contact them as soon as possible because places are limited.

  • Telephone 0116 295 4183,
  • email us: getinvolved@leicestercity.nhs.uk,

Event details:

Date: 16th February 2011

Time: 14:30-16:30

Venue: Voluntary Action Leicestershire

9 Newarke Street

Leicester

LE1 5SN

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